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May 28, 2013

Top 20 Grant-Giving Disease Foundations

These generous nonprofits help keep research alive.

Top 20 Grant-Giving Disease Foundations

This list includes disease foundations with research expenses of at least $1 million. [© Dani Simmonds - Fotolia.com]

  • #10. American Heart Association9

    % of Revenue Awarded: 18.3%

    Year Ended June 30, 2012, Total Public Support and Other Revenue: $639.525 million

    Year Ended June 30, 2012, Research Expense: $128.525 million

    • Amount of Research Grants and Awards Awarded: $116.872 million
    • % Awarded as Grants: 90.9%

    Headquarters: Dallas, TX

  • #9. The ALS Association

    % of Revenues Awarded as Grants: 18.4%

    Year Ended January 31, 2012, Total Support and Revenue: $19.043 million

    Year Ended January 31, 2012, Research Expense: $3.904 million

    • Amount of Research Grants Awarded: $3.500 million
    • % Awarded as Grants: 89.6%

    Headquarters: Washington, DC

  • #8. Muscular Dystrophy Association

    % of Revenues Awarded as Grants: 21.7%

    2011 Total Unrestricted Revenues and Support: $156.589 million

    2011 Research Expense: $38.126 million

    • Amount of Research Grants Awarded: $33.945 million
    • % Awarded as Grants: 89.0%

    Headquarters: Tucson, AZ

  • #7. Leukemia and Lymphoma Society (LLS)10

    % of Revenues Awarded as Grants: 22.4%

    Year Ended June 30, 2012, Total Revenue: $305.090 million

    Year Ended June 30, 2012, Research Expense: $73.512 million

    • Amount of Research Grants Awarded: $68.398 million11
    • % Awarded as Grants: 93.0%

    Headquarters: White Plains, NY

  • #6. Melanoma Research Alliance Foundation

    % of Revenue Awarded as Grants: 24.3%

    2011 Total Revenues, Public Support, and Other Income: $21.035 million

    2011 Program Services Expense: $6.024 million12

    • Amount of Research Grants Awarded: $5.104 million
    • % Awarded as Grants: 84.7%

    Headquarters: Washington, DC

  • #5. Parkinson’s Disease Foundation

    % of Revenue Awarded as Grants: 46.2%

    Year Ended June 30, 2011, Total Revenue and Support: $10.284 million

    Year Ended June 30, 2011, Research Expense: $5.671 million

    • Amount of Research Grants Awarded: $4.750 million13
    • % Awarded as Grants: 83.8%

    Headquarters: New York, NY

  • #4. Alzheimer’s Drug Discovery Foundation14

    % of Revenue Awarded as Grants: 52.0%

    2011 Total Support and Revenues: $10.614 million

    2011 Total Research Expense: $5.762 million

    • Amount of Research Grants Awarded: $5.522 million
    • % Awarded as Grants: 95.8%

    Headquarters: New York, NY

  • #3. Myelin Repair Foundation

    % of Revenue Awarded as Grants: 53.9%

    Year Ended June 30, 2012, Total Revenue and Support: $5.328 million

    Year Ended June 30, 2012, Research Expense: $4.840 million

    • Amount of Research Grants Awarded: $2.873 million
    • % Awarded as Grants: 59.4%

    Headquarters: Saratoga, CA

  • #2. Juvenile Diabetes Research Foundation

    % of Revenues Awarded as Grants: 57.0%

    Year Ended June 30, 2012, Total Revenue: $193.039 million

    Year Ended June 30, 2012, Research Expense: $123.928 million

    • Amount of Research Grants Awarded: $110.071 million
    • % Awarded as Grants: 88.8%

    Headquarters: Norwalk, CT

  • #1. Michael J. Fox Foundation

    % of Revenues Awarded as Grants: 82.6%

    2011 Total Revenue: $65.183 million

    2011 Research Expense: $59.754 million

    • Amount of Research Grants Awarded: $53.858 million
    • % Awarded as Grants: 90.1%

    Headquarters: New York, NY


Readers' Comments

Posted 06/05/2013 by Erin Stoeber

Your article about the Top 20 Grant-Giving Disease Foundations was very interesting, however it failed to include the Crohn’s & Colitis Foundation of America (CCFA). As one of the largest private funders of IBD research, we feel this is a significant error on your part.

In 2012, we supported 160 new and ongoing grants. We have invested more than $200 million in approximately 1,525 senior research and training grants over the past 45 years. We invested $15.1 million in research in 2012 which would have put us 6th and 7th behind the Parkinson's Foundation. We hope that next year, we will be included in this list. For more information about CCFA, visit ccfa.org.

Posted 05/29/2013 by Stephen Rose

I read with great interest your article titled "Top 20 Grant-Giving Disease Foundations" in the May 28, 2013, issue of Genetic Engineering & Biotechnology News. The Foundation Fighting Blindness is a non-profit organization which, like those highlighted in your article, is dedicated to supporting innovative early and late translational research and clinical trials. We are funding research to find preventions, treatments and cures for inherited orphan retinal degenerative diseases such as retinitis pigmentosa, Usher syndrome (the world's leading cause of deaf-blindness), Stargardt disease (juvenile macular degeneration) and other blinding conditions affecting the back of the eye.
Based on percent of revenue awarded as grants (see statistics below), the Foundation Fighting Blindness would have ranked sixth on your top-twenty list.
% of revenue awarded as grants 41.7%
2012 Total revenue $41.360 million
2012 Research expense $20,075,144
Amount of research grants awarded* $17,245,932
% of research expense awarded as grants 85.9%

Headquarters: Columbia, Maryland


Founded in 1971, the Foundation Fighting Blindness has raised more than $500 million for its mission and, as a result, is at the point of actually restoring sight. In ongoing, landmark clinical trials of a novel gene therapy, which were made possible by decades of Foundation funding, dozens of children and adults have had significant vision restored, including a boy who was able to put away his white cane and play baseball after the treatment. This medical breakthrough has led to additional human gene therapy studies for a variety of retinal diseases.

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